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**New Item** Cambridgeshire Branch Association
Visitor Recruitment Pack:
Association
Visitor Recruitment Pack
Patients
and Members of the Public to get Involved:
Patients and members of the public to get
involved in research
The ALS
Association:
www.alsa.org
The
Primary Lateral Sclerosis site at:
http://www.geocities.com/freyerse
The ALS
Digest email registration site is:
bro@huey.met.fsu.edu
**New Item** Elinor Asks:
Elinor
Asks
MND
Association helpline:
helpline@mndassociation.org
International Alliance
of ALS/MND Associations
International Alliance of ALS/MND Associations
Other MND
Branches:
Lincolnshire http://www.mndlincs.org.uk/
Branch Contact: Sue Hickmore, Tel: 01522 526898
Kings Lynn http://www.mndkingslynn.org/
Branch Contact: Jill Brock, Tel: 01485 600609
Suffolk Fundraising Group http://www.mnd-suffolk.co.uk/
Northamptonshire http://www.northants-mnd.freeuk.com/
Branch Contact: June Lewis, Tel: 01604 583821
N Bedfordshire http://www.mndnorthbeds.freeuk.com/
Branch Contact: Phil Gilbert, Tel: 01234 713933
Building
User Involvement in Motor Neurone Disease, a project developed and co-ordinated
at King's College, London
for people with MND, their carers and families: www.build-uk.net
For
carers in the Suffolk
area, a new interactive website has been launched: www.carersvoice.org
Useful local contacts
for People living with MND and their carers
There are many organisations in our region offering help and information
on many areas of need.
Wisbech Shopmobility, 15 Albion
Place, Wisbech, PE13 1AI Tel: 01945 463772 A
Drop-In Centre for over 60s and less mobile people. Open Mon-Sat 9am-4pm Free loan of aids, including
scooters, wheelchairs, walking aids etc.
Directions Plus Tel: 01223 569600 Helpline 01354 659179 (10am-4pm). Ely Helpline 01353
669431. Handbook for Carers. Independent, free, confidential advice on all
aspects of daily living
Carers UK Tel: 0808 808 7777 Mon - Fri 10am-12 noon and 2pm-4pm Offers
advice and information for people looking after ill, disabled, or frail
relatives or friends at home. www.carersonline.org.uk
Crossroads - Caring for Carers 1 Museum Square, Wisbech
PE13 1ES Tel:01945
463952 (9am 2pm) e-mail:
Fenland.E-mail to: Crossroads@care4free.net. Branches across the county.
Offers 'sitting service' for short regular breaks for carers.
Wheelchair Hire Short term hire, holidays etc, Mobility Centre 5
Rookery Place, Fenstanton PE 28 9LZ Tel:01480 465533 or 01480 469208
Chris Elliott Adaptions Saville Road Business Park, Peterborough
www.chriselliottadaptions.co.uk or Tel: 01733 333023 Vehicle adaptation, car
access hoists etc
Kilverstone Mobility Centre 01842 753029 Driving assessment tests and
advice on car adaptations, and scooters
Winston's Wish Tel 0845 203 0405 www.winstonswish.org.uk This
charity provides support for bereaved children and their families. Children
often have difficulty talking to adults close to them about a death in the
family. Also have a family helpline for people supporting these children.
If you have a specific query or problem which is not currently being
addressed, you can always phone National Office Helpline on 08457 626262, Liz
Cooper on 01362 87950 or Chris Glover on 01733 380208, and we may be able to
find someone to help.
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